Websites

[A significantly updated version of this page, with many more resources, including some that offer material in Indian languages, is available at my new site, at this link: Other dementia/ caregiving resources ]

One of the definitional sites for dementia is the site of the Alzheimer’s Association. It has loads of stuff to read and use, including several booklets for specific aspects of caregiving. Want to know what Alzheimer’s is? Or whether you or someone you know may be having it? Want to know what is happening in this field? Or what a caregiver needs to know for early onset? For end-of-life? How should you make your home safe? How can you handle difficult behaviors? Or prevent wandering? It’s all there, a wealth of information. This site is worth a nice, long visit. The documents are well-written, available for download, and exist in varying degree of detail so you are likely to get whatever you need, packaged in the right size.

Another very good site is the Alzheimer’s Disease Education and Referral Center page of the National Institute on Aging (US National Institutes of Health). This site, too, has several free publications on dementia and caregiving. They have graphics that clearly show the brain damage, very useful if one is trying to understand the organic nature of the disease. Really worth a long, long look.

HBO’s Alzheiemer’s project is another resource that is useful. Videos, reports, workbooks, are all available at this site. Did you know, for example, that 54% of the people (USA statistics) have been touched by Alzheimer’s in some way (self, friend, relative, colleague)? The DVDs produced by HBO are available from HBO and also from Amazon (which, I am sure, will have discounts; they always do). I’ve given a link on my books and DVDs page.

If you are anywhere outside the US, some of the information on these sites may not be relevant, such as the legal suggestions, health insurance, and ways to handle medical care. Different countries may have their own site. For example, the UK site, also a very useful site,  is at Alzheimer’s Disease International. Some blogs I find useful and interesting are: Laura Bramly’s ElderCareTalk and Lori LaBey’s Alzheimer’s Speaks.

I live in India, and am providing local resources on my Resources for Indian caregivers page.

[A significantly updated version of this page, with many more resources, including some that offer material in Indian languages, is available at my new site, at this link: Other dementia/ caregiving resources ]