Here’s a list of books I and/ or others I know have found great to equip us to caregive for dementia patients. I’ve provided links to Amazon to buy them. If you order using the provided links, I get a ‘kickback’, but the books and DVDs suggested here are just as good whether you beg, borrow or steal them, or order them from some other site or using some other link. Just to let you know, though, that any money I ‘earn’ through the links on this page will be routed back to organizations involved in supporting dementia and caregivers.
A small note: Many suggestions below are for Alzheimer’s dementia, the most common form of dementia. They will, however, also be useful for other dementias aS problems from a caregiver’s perspective are much the same except for medication and treatment possibilities, and the nature of progression involved.
The Alzheimer’s Project: HBO has created an excellent set of DVDs on Alzheimer’s as part of their Alzheimer’s project. This set includes stuff for patient, caregivers, friends, relatives, and is extremely sensitively made. Definitely worth buying.
Dementia/ caregiving in India: my other sites
In addition to this "Dementia and caregiving" section on this site, I maintain two more sites for dementia care in India.
Blog on dementia and caregiving in India
This blog has over a hundred entries, where I share my personal caregiving journey, dementia behavior challenges faced, tips gathered, interactions with other dementia caregivers in India, comments on dementia care in India, etc.
Website for dementia caregivers in India
This website contains information on dementia, planning care, essential caregiving skills, resources in India (including city-wise information for cities like Bangalore, Delhi, Hyderabad, Kolkata, Mumbai, etc.), etc. The focus is caregiving in the Indian context, and examples, tips, and specific information are all relevant for caregivers in India.
The site also includes "caregiver voices": interviews of caregivers and experts, links to blog entries that are relevant, and links to news items where caregivers talk of their experiences. Look around the site, send me your comments and suggestions, spread the word...
Caution:These are not medical sites, and not intended to replace medical advice. Please consult your doctor for any specific situation.